We have met so many great people On this journey with Owen. All these children
hold a special place in our heart. When you are thinking of Owen, please think of
them too.
Trey Purcell is our Canadian friend. He will be 3 in March. Trey
also has Hunter Syndrome. Trey has just started Enzyme
Replacement Therapy (ERT) in British Columbia. He is the first
Canadian to receive Elaprase who was not part of the clinical
trial--this is due to the work of his mama, Deb Purcell. Trey lives
with his parents, Deb and Ryan Purcell and his lil' brother Avery.
We have gotten very close to his family and hope to meet them
soon :)
We met Andrew at Duke when we were there for tests.
Andrew is one week (to the day) younger than Owen and
has just received a cord blood transplant at Duke for
Hunter syndrome at the beginning of this year.
Please keep him and his parents, Janeen and Joe, in your
hearts as he begins his transplant journey.
http://www.caringbridge.org/visit/andrew1
Dani is a year old and has just received a bone
marrow transplant at St. Louis Children's Hospital
for Hurler's Syndrome (MPS1).
She is recovering and healing and growing her new
cells. She is doing fantastic :)
Please keep her and her parents in your thoughts
and prayers as she continues on her journey.
http://danicaboni.blogspot.com/
Caitlin Vespe is a lil' over a year old and
also battling Hurler syndrome. She is
currently receiving outpatient care at
Cincinnati Children's Hospital. She
received her transplant last fall.
She is also doing well and her parents are
just waiting for her body to be strong
enough to go back home.
Please keep her and her parents in your
thoughts and prayers as she continues her
journey.
http://www.carepages.com
You need to sign in and CaitlinPaigeVespe
is the site name.
